Welcome to my blog!

This blog is a journal of our struggles with food allergies and eosinophilic gastrointestinal diseases (EGIDs). ("DD" stands for "dear daughter", so whenever you see it in the blog it is referring to my daughter and our personal experience.) My hope is for this blog to be a source of information and support to others who might be trying to investigate, diagnose, treat, or live with, food allergies and EGIDs. Feel free to leave comments with suggestions or requests of what you would like to see on this blog. This is a work in progress. :)




Showing posts with label Allergy treatments. Show all posts
Showing posts with label Allergy treatments. Show all posts

Our NAET progress

November 2010

I just realized that it's been a while since I've updated. We've been seeing our new NAET provider for about 3 months now (wow- I hadn't realized it was that long until I looked at the calendar!) DD has been treated and cleared for:
  • BBF (brain-body balance formula)
  • egg mix (she had to do this treatment 3 times before she cleared it)
  • calcium mix
  • vitamin C mix
  • B-complex mix
  • sugar mix
  • iron mix
  • and she did the grain mix last week (we'll find out if she's cleared at the next appointment)

Now don't get excited... just because she "cleared" the treatment doesn't mean that all these foods are suddenly safe for her (I wish!) As it was explained, all foods have a ton of different vitamin/mineral components, and sometimes you have to be cleared for each individual component before you can tolerate the food.

The only thing that we've "tested" at home was egg. DD is contact reactive (hives) to raw egg, so I figured it would be pretty easy to see if she's still allergic. I put a little raw egg on her arm the other day, let it sit for about 2 minutes, then washed it off thoroughly. Within about 5 minutes, she had one itsy-bitsy hive. It faded within the next half hour. So obviously, she is still reactive, though maybe not as much as she was before? It's not definitive, because I didn't leave it on very long. But it is a little encouraging.

It's so hard to continue shelling out money for a treatment (especially one not covered by insurance) without seeing immediate results. But I'll tell you a few things that we have seen so far with this treatment:

  • One of DD's reaction/inflammation symptoms is dark, sticky ear wax. She hadn't had any for a while, but earlier this year it came back. A lot of it. Gobs and gobs. We modified the diet, but didn't see any changes (I'm suspecting it was the quinoa that we added to her diet after losing buckwheat.) But there weren't any other major symptoms, so we let it slide. The first few treatments, it seemed like the wax was less for a couple days, but then it would come back full force. I stopped paying attention for a while, but looked last month and she had hardly any visible wax. I checked again today, and there is none.
  • After each visit, DD gets really emotional. Almost every time, we have a major meltdown when we leave (and since removing all her food triggers from her diet, meltdowns are few and far between, so this is definitely not "normal" for her.) I can tell that something is shifting in her body. What, I don't know. But something is happening for sure.
  • This week, she did the grain mix. We've been grain free for about a month, but probably should have been long before that. She is IgE positive to every gluten-containing grain that we've tested, and the gluten-free grains (which the allergist office doesn't have tests for, so we don't know if they're IgE or not) always cause some sort of digestive upset. The week before this treatment, she was having some sort of food reaction and was sleeping terribly. The night of the treatment, she woke up only 30 minutes after falling asleep, and I thought for sure we were in for a rough night. I woke up in the morning, and realized that she hadn't budged all night!! She has been sleeping great all week since then. Twice, she stayed in her bed the entire night, not waking once. And the times she has woken, she's quietly climbed into bed with us and fallen right back asleep, with no assistance needed. No tossing and turning, no crying, nothing. So I know for sure the grain mix made a positive change for her. I'll be really curious to see if it tests ok for her this week.

We're trying to decide right now if we want to take the GI doc's recommendation and get DD scoped (endoscopy/colonoscopy) to check for: eos disorders, inflammatory bowel diseases, pancreatic enzyme deficiencies, etc. I'll report back if I ever come to a decision. ;)

NAET treatments

Copying and pasting from my personal blog:

In allergy news, we've (kind of) started NAET treatment with this guy for DD and I. I say kind of because today was the 2nd time we've shown up for an appointment and he wasn't there. We saw him for a consultation a couple weeks ago, and he did some muscle testing on us to show us how it worked. I have to say, it really blew my mind. I was not expecting the obvious results that we got.

If you don't know what muscle testing is- there are a few ways to do it, but in this case he puts a vial containing a food substance in one of your hands. The other arm you hold up, and he tries to press it down. If your body is ok with the food, you have no problem holding up your arm; but if you're allergic to the food, you lose strength and can't hold your arm up. I know, I know... sounds crazy, right? I couldn't believe the results. He put a vial of rice (normally fine for most people) in my hand, no problem. Pushed on my arm, I pushed back and held steady. Then he put a vial of sugar in my hand (most people have problems with sugar), and I literally could NOT keep my arm up! He wasn't pushing harder or anything, it was like my muscle just gave out. It's really hard to describe how crazy it felt. I was trying and trying to hold my arm up, and it just wouldn't stay put.

So after the muscle testing, and reading the patient testimonials on this guy's website (he claims this technique can get rid of anaphylactic allergies!), I was really excited to try it out, even though it's not something covered by insurance and is going to be pretty expensive. But, he's giving us a discounted rate AND treating both DD and I at the same time (which is great since we're still breastfeeding- because it's hard to always tell if she's reacting to something that I'm allergic to, or if she's allergic herself), so it's really a great deal for what we're paying.

Anyway.... we had our first treatment last week for egg mix, which covers eggs and other inflammation sources. (They do a series of around 15 specific foods/vitamin/minerals first, before targeting other things; many times people are reacting to a specific component of the foods [like calcium, for example], so by doing these vitamins and stuff, sometimes many allergies will clear up without having to target the foods directly... if that makes any sense. It's way past my bedtime as I'm typing this. ;) He explained that the first mix usually clears people about 97%, and then the 2nd mix they do contains a kind of egg "booster" which will clear it the rest of the way. I'm really glad we're starting with egg, not only because I want to eat them again, but it will be a really easy test to see if this stuff works, as DD is contact reactive to raw egg (immediate hives where it touches her skin.) Today was supposed to be the 2nd treatment, but I guess he had an emergency and had to cancel. :( Hopefully we'll get in early next week and I can do an egg test and report our progress. I'm trying not to get my hopes up.....

We've also started a new homeopathic remedy for both DD and I, and we're taking a ton of cell/tissue salts to boost our nutrition absorption. Hopefully by this fall, we'll have all sorts of good progress to report.

I'm curious if anyone else out there has tried NAET with positive/negative results? It's so hard not to get my hopes up, especially after reading stories about this working for other people. But I've also read stories about people seeing absolutely no results after pouring a ton of money into it, so I can only hope that we'll get at least some benefit from it.