Welcome to my blog!

This blog is a journal of our struggles with food allergies and eosinophilic gastrointestinal diseases (EGIDs). ("DD" stands for "dear daughter", so whenever you see it in the blog it is referring to my daughter and our personal experience.) My hope is for this blog to be a source of information and support to others who might be trying to investigate, diagnose, treat, or live with, food allergies and EGIDs. Feel free to leave comments with suggestions or requests of what you would like to see on this blog. This is a work in progress. :)




Test results

Well, it's been a while since I posted... honestly, things have just been overwhelming and a little depressing lately. We're still losing foods; DD can no longer tolerate any grains whatsoever. After eating buckwheat for a year and a half, she's suddenly reacting to it.

We've done a whole bunch of testing in the past few weeks. So far, we've gotten back IgE (skin prick) and ELISA results (IgG/compliment-antigen test through Sage Labs.) In the coming weeks we should get results from our celiac gene test, OAT, and comprehensive stool test. We're seeing a new allergist, who we like, and a new environmental medicine doc for the alternative testing. We might see a GI doc soon as well, although I'm a little hesitant because I know they'll want to scope her to look for damage, and I'm not sure I'm ok with getting my 2 year old put under. :(

IgE (positive) results: almond, beef, chicken, coconut, corn, cow's milk, egg white, egg yolk, pea, peanut, pork, rice, rye, salmon, shellfish mix, soybean, tree nut mix, wheat

IgG (positive) results: barley, BHA, blueberry, broccoli, cabbage, cauliflower, celery, cherry, chili pepper, coconut, dill seed, duck, garlic, gelatin, gluten, grapefruit, hazelnut, honeydew, lamb, lemon, lima bean, millet, oat, orange, peach, pear, pinto bean, pumpkin, raspberry, red #40, rye, safflower, soybean, squash mix, strawberry, sunflower, sweet potato, swordfish, tomato, trout, watermelon, wheat, white potato.

As you can see, it's a little overwhelming. We go back to the allergist in a few months for more testing, am I'm positive that we'll get a longer list then. (We tested as many as they could fit on her back, and she reacted to almost all of them!)

My goal for this month is to get serious with a rotation diet. Since we have so few safe foods, this means that I'll have to incorporate some mild-reaction foods... but hopefully in the long run, it will help. I will also try to come back later this week and write a bit about rotation diets!


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*update: Shortly after I published this post, I got DD's celiac gene test results, and.... NO CELIAC!! Yay! (The test can't tell you if you have celiac, only that you are predisposed, but it CAN tell you if you don't have it if you don't carry any of the genes.) She does has two other genes showing gluten sensitivity, but we already knew that. :)

6 comments:

nessabean said...

Wow that's a lot of foods to react to. Have you tried homeopathy at all? I'd be interested in your experience if you have.

Jessica said...

We have- we've used (and are still using) a constitutional remedy and flower essences. It's so hard to tell what works and what doesn't, when we're changing multiple factors all the time- different foods, different vitamin supplements, etc.
Things seems to be really going great last year at this time (after we started homeopathy and craniosacral therapy) and then something happened and it all went downhill again. :(

Hanieh said...

I'm so sorry that you're having a difficult time.

Have you tried acupuncture and/or chinese herbal medication? I've heard really good things....

Jessica said...

I have used acupuncture and Chinese herbs myself, but not yet on DD. We're using homeopathy right now, so that covers us on the energy medicine front. :) We might do some in the future though.

Nicole Marie said...

Our celiac came back negative as well, but we are still doing the gluten free thing. I'm so sorry that you are feeling overwhelmed and depressed. It would be really helpful to see some photos of the eczema. It's really informative to see the different severities and what a reaction looks like.

xo

Jessica said...

Nicole- keep going down through Our Story- there are a few pictures.

And although she was negative for celiac, she was positive for all gluten sensitivity genes (as am I), so we also continue to be gluten free.