Well, it's been a while since I posted... honestly, things have just been overwhelming and a little depressing lately. We're still losing foods; DD can no longer tolerate any grains whatsoever. After eating buckwheat for a year and a half, she's suddenly reacting to it.
We've done a whole bunch of testing in the past few weeks. So far, we've gotten back IgE (skin prick) and ELISA results (IgG/compliment-antigen test through Sage Labs.) In the coming weeks we should get results from our celiac gene test, OAT, and comprehensive stool test. We're seeing a new allergist, who we like, and a new environmental medicine doc for the alternative testing. We might see a GI doc soon as well, although I'm a little hesitant because I know they'll want to scope her to look for damage, and I'm not sure I'm ok with getting my 2 year old put under. :(
IgE (positive) results: almond, beef, chicken, coconut, corn, cow's milk, egg white, egg yolk, pea, peanut, pork, rice, rye, salmon, shellfish mix, soybean, tree nut mix, wheat
IgG (positive) results: barley, BHA, blueberry, broccoli, cabbage, cauliflower, celery, cherry, chili pepper, coconut, dill seed, duck, garlic, gelatin, gluten, grapefruit, hazelnut, honeydew, lamb, lemon, lima bean, millet, oat, orange, peach, pear, pinto bean, pumpkin, raspberry, red #40, rye, safflower, soybean, squash mix, strawberry, sunflower, sweet potato, swordfish, tomato, trout, watermelon, wheat, white potato.
As you can see, it's a little overwhelming. We go back to the allergist in a few months for more testing, am I'm positive that we'll get a longer list then. (We tested as many as they could fit on her back, and she reacted to almost all of them!)
My goal for this month is to get serious with a rotation diet. Since we have so few safe foods, this means that I'll have to incorporate some mild-reaction foods... but hopefully in the long run, it will help. I will also try to come back later this week and write a bit about rotation diets!
*update: Shortly after I published this post, I got DD's celiac gene test results, and.... NO CELIAC!! Yay! (The test can't tell you if you have celiac, only that you are predisposed, but it CAN tell you if you don't have it if you don't carry any of the genes.) She does has two other genes showing gluten sensitivity, but we already knew that. :)