tag:blogger.com,1999:blog-4566340343911587904.post2933856848848350513..comments2022-03-30T07:36:32.361-07:00Comments on My Food Allergic Babe: EE/EGIDJessicahttp://www.blogger.com/profile/11710002525526560663noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4566340343911587904.post-16562336026830240912011-09-06T19:21:06.510-07:002011-09-06T19:21:06.510-07:00Our son has EE and was diagnosed as failing to thr...Our son has EE and was diagnosed as failing to thrive during his first year. Since then, we found a specialist, eliminated many foods, started Elecare (like Neocate), and when he went in for a scope, he had NO eosinophils in his esophagus. It CAN be done. We suspect that he's alergic to gluten, and he's still off all forms of dairy, oat, nuts, egg, etc. Food aversions and psychological avoidance has made feeding a challenge, but we are working through those issues slowly. He's now 2 1/2 and as healthy and happy as ever. <br />J.B.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-40603918178362047042011-03-13T19:25:51.620-07:002011-03-13T19:25:51.620-07:00The reason quinoa was a problem for us was because...The reason quinoa was a problem for us was because she was reacting to it. We finally skin tested and got a huge positive for quinoa.<br /><br />If she's already reacting, you shouldn't have to add anything to her diet before the scope. I added some minor triggers because although I suspected the quinoa, I wasn't positive that she was reacting to it and I wanted to be sure they would find something if there was something to find.Jessicahttps://www.blogger.com/profile/11710002525526560663noreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-70796035664559944272011-03-13T00:24:37.763-08:002011-03-13T00:24:37.763-08:00Oh, I will definately arrange a GI for her on Mond...Oh, I will definately arrange a GI for her on Monday. Also I read in the post that quinoa might have caused quite a lot of damage. Why would that be? I suspect quinoa for all our troubles as apart from Neocate this is her main source of nutrition. Also if they perform a biopsy would I have to give her something offensive or just keep her as she is?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-416799276480355182011-03-11T15:35:08.895-08:002011-03-11T15:35:08.895-08:00Sorry to hear that. :(
Yes- trouble swallowing...Sorry to hear that. :( <br /><br />Yes- trouble swallowing is a huge symptom of EE. I would definitely get her in to see a GI!Jessicahttps://www.blogger.com/profile/11710002525526560663noreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-66519477741660217532011-03-11T15:11:37.383-08:002011-03-11T15:11:37.383-08:00My daughter has been FPIES at 9 months. At that ti...My daughter has been FPIES at 9 months. At that time we introduced foods which were her safe foods. Beetroot, quinoa, pork, banana, spinach, cane sugar, sunflower oil, apple, white potato and Neocate. Now she is 18 months and is down to beetroot, pork, banana, quinoa and Neocate. Always after a food failure she loses weight, doesn't put on any for 3-4 weeks and for up to 7 days after a failure she basically can't swallow as it seems to hurt her throat. Doesn this mean she has EGID or EE? Is that normal for FPIES? Please let me know as we are here very worried as I keep taking her safe foods away. She doesn't get any better, keeps having tiny bruises all over her body which is a sign of malabsorption and also eczema patches.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-77303197063106255032011-01-30T18:51:01.713-08:002011-01-30T18:51:01.713-08:00I'm so sorry to hear about your child's di...I'm so sorry to hear about your child's diagnosis. I've been following your blog for a while now as my allergic kid does NAET, too. Have you continued with NAET? We're now on treatment 56 and have seen some nice improvement. One thing you might want to research and ask your doctor about is a medication called LDN--low dose naltrexone. My son is on it as it's suppose to have a homeopathic effect on the body to put the immune system back into balance. It's used in a variety of autoimmune issues including MS, Corhn's, colitis, IBS, and celiac. It's an old drug that can't be patented so it has to get all funding from private research and needs to be made by a compounding pharmacy. Here's more info: http://www.lowdosenaltrexone.org/#How_does_LDN_workEczema Momhttp://extinguishingeczema.blogspot.com/noreply@blogger.comtag:blogger.com,1999:blog-4566340343911587904.post-81339831140915904302011-01-29T17:02:21.190-08:002011-01-29T17:02:21.190-08:00My son was diagnosed with EE 5 years ago at 12 yea...My son was diagnosed with EE 5 years ago at 12 years old. It is a constant battle figuring out what foods he is allergic to. We now know it's: dairy, eggs, legumes (including soy and peanuts), seafood, grains (including rice & corn), tree nuts, and mustard. Trying to find foods he can eat, particularly starches is very challenging. Any ideas would be great.Unknownhttps://www.blogger.com/profile/13423390749633642817noreply@blogger.com